,Next week is my 3rd Tysabri infusion. Just before my 2nd infusion I had bloodwork done and the results all came back within the normal range, so...no incurable brain infection for me! Woot-woot.
My 2nd infusion was also the 1st one done through my infusaport. The site was still very tender and swollen, so the needle insertion was pretty painful, but it was just that one poke and then smooth sailing from there. Normally I get poked anywhere from 3-5 times when the nurses are trying to find a "good" vein, so once is definitely an improvement. I was assured that it won't be as painful once everything is all healed up. The swelling has definitely gone down significantly, but the site is still pretty tender, so I imagine next week will not be the less painful week, but hopefully next month it'll be all good. My numbness and other MS symptoms have not improved. Though the drug company does not claim that symptoms will be relieved by Tysabri, I was still hopeful that would happen for me, because I know that others have had a great reduction in symptoms since starting this drug. I'm hoping more infusions will make it happen. I haven't had an MRI since starting my new disease modifying therapy, so I have no idea if it's doing its job of keeping my brain free of new lesions. I think I have 3 more months before my next MRI, so 6 months after the start of Tysabri. Some people that are also on this med not only become new lesion free, but even have had old lesions completely heal up and disappear, which is amazing. Word on the street is that Tysabri "pauses" Multiple Sclerosis progression in its tracks, that kind of result would also be nothing short of amazing. Right now I can still operate my legs, I can still think (fairly) clearly, I am not blind...and I'd really like to keep it this way! I mean, obviously I'd like to be able to do all of the things that I could do pre-MS, in an ideal world, but that'd be hoping for too much. For now I'm just going to hope that nothing gets any worse.
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