Living with Multiple Sclerosis is such complete and utter bullshit.
Fatigue. Experiencing MS fatigue is NOT AT ALL the same as just being "really tired" or "totally exhausted" or whatever other phrase you can come up with to explain how sleepy you are after a few nights of getting a poor nights rest. EVERYBODY is tired. But not everybody is just going about their normal every day business, only to find themselves suddenly limping, barely able to put one foot in front of the other to take the necessary number of steps it takes to get to a spot where they can safely sit down. Not everybody is in the middle of running a PTO meeting- too late in the evening- and becomes unable to put their thoughts into words, or even find the right word to describe an object, so it becomes an embarrassing game of charades. Not everybody has to try to decide if they can safely pick their child up from school at 3:45 in the afternoon each day based on how hard the wall of fatigue hit around 2:00, because they become akin to a drunk driver when it knocks them down. I know people don't understand why I have to use handicapped parking. Often, when you see me getting in or out of my car, it appears as though I am a physically able person. Here's the thing...every step I take takes something away from me. I only have so many steps in me each day. So, yes, while I could park out farther in the parking lot and walk the distance necessary to get inside, It would be a struggle for me to walk around the store and do all of my shopping and then walk across that parking lot again to get back to my vehicle. Or maybe it would be fine, but when I got home, I wouldn't be able to put my groceries away. It just takes MORE for me to be able to do these normal activities. Even with the nearby parking, sometimes I have to forgo getting everything I planned to get....the milk is ALWAYS way in the back of every store. Way.in.the.back. Even when I manage to get out, get groceries, actually put them away AND even pick my kid up from school...that's it. It for me for the rest of the day. I literally can not accomplish anything else. Complete and utter bullshit. And really difficult to explain.
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